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Thursday, 13 June 2019

WHAT IS THE RESTAURANT THAT MAKES MISTAKES

The Restaurant That Makes Mistakes is a new Channel 4 series about the UK’s first ever restaurant staffed by people living with dementia.

Alzheimer's Society is a proud partner of this ground-breaking experiment, in which 14 volunteers all living with some form of dementia are about to make viewers think again. Over 42,000 people with dementia are under the age of 65, yet only 18% of them have continued to work after diagnosis.


The Restaurant That Makes Mistakes shows how with the right support, and small adjustments, many people with dementia can stay independent and continue to contribute in the workplace.
How can I watch The Restaurant That Makes Mistakes?

The Restaurant That Makes Mistakes is a four-part series that begins on Wednesday, 12 June at 9pm.

You can watch The Restaurant That Makes Mistakes on All 4, the on-demand channel from Channel 4.
Follow the link




Wednesday, 12 June 2019

THE DEMENTIA FORUM x 2019 - PART TWO


INTERVENTION OF HM QUEEN SILVIA OF SWEDEN

“While we may feel that there is little cause for celebration, there are encouraging examples of the opposite; of developments that have been achieved through the uniting of minds – by coming together to make a difference. This meeting, Dementia Forum X, also has the ambition to serve as a platform for international collaboration and knowledge sharing which, to me, seems to be the only way forward to achieve lasting change.”

HM Queen Silvia of Sweden was the keynote speaker at Dementia Forum X 2019. Her Majesty encouraged stakeholders to look beyond dementia’s worrying statistics, and focus instead on the vast developmental potential in the field.

If you wish to read more more about the Dementia Forum, click this link




Tuesday, 11 June 2019

THE DEMENTIA FORUM x 2019 - PART ONE



The third Dementia Forum X took place on May 15th, 2019, at the Royal Palace of Stockholm. We were humbled by the presence of more than a hundred and thirty of the world’s leading business executives, policy-makers, and key stakeholders from the sectors of society, care, research, finance, and business. I am hopeful that the inspiring conversations which took place on the topics of Finance, Innovation and Women’s Brain Health have helped lay the foundations of a dementia-ready future.
We would like to express our deepest thanks to Her Majesty Queen Silvia of Sweden for her support of Dementia Forum X since the start. We are extremely grateful that Her Majesty has generously offered the magnificent Royal Palace of Stockholm as a venue for the event, and for Her Majesty’s personal commitment to improving the state of elderly and dementia care worldwide which is, undoubtedly, our fundamental ambition. In this spirit, I extend my gratitude and warm regards to Her Majesty Queen Sofía of Spain, and Her Royal Highness Princess Sofia of Sweden for their unwavering support as they graced the event for the second time since 2017. I am also sincerely thankful to Her Imperial Highness Princess Takamado of Japan and the First Ladies of Iceland Mrs. Eliza Reid and Chile Mrs. Cecilia Morel for honoring us with their presence.
Without the cooperation of our partners, Dementia Forum X would not be possible. The credit for its continued success goes to our collaboration partners Forte, Karolinska Institutet, Stiftelsen Silviahemmet, Svenskt Demenscentrum and Swedish Care International along with leading organizations AARP, Alzheimerfonden, Alzheimer’s Disease International, Arjo, Biogen, BioArctic, Boklok, Dr. Åke Olsson Foundation, Global Alliance on Women’s Brain Health, Home Instead Senior Care, Otsuka, Skandia and Öhman.
This year, we were very fortunate to have the World Health Organization launch their Global Guidelines for Dementia Risk Reduction at Dementia Forum X. Currently there is no cure for dementia, but addressing risk factors can slow its onset and progression. Thus these guidelines are essential in ensuring that we as a global society are prepared to address the challenges of the disease and take proactive measures to reduce the risk. You will find in this book a summary of the guidelines.
When we founded Dementia Forum X, our aim was to bring together representatives from different sectors and provide a medium for important dialogue around improving the lives of those with dementia, their families and caregivers. We are dedicated to achieving this goal and move a step closer to dementia-ready societies each year. I am eagerly anticipating the results of this year’s meeting, and look forward to reviewing them with our partners during the Working Meeting in 2020.
Highlights from the event can be found in this book. We hope it serves as a tool for critical reflection and the basis for future work.
Thank you for your presence at Dementia Forum X. We look forward to welcoming you again in 2021.
Dr. Karin Lind-Mörnesten, CEO of Forum for Elderly Care and Swedish Care International
klm@dementiaforumx.org



If you wish to read the entire document about this event, please click this link

THE TRUE COST OF PARKINSON´S IN THE USA

THE TRUE COST OF PARKINSON´S IN THE USA
May 15, 2019
(an article of Todd Sherer, PhD)

Editor's Note: For more Foundation news and research updates, read the Spring/Summer 2019 edition of The Fox Focus, our biannual newsletter.
Our soon-to-be-released economic burden study clearly lays out the stakes in Parkinson's. It provides a comprehensive picture of the toll the disease takes.
The study shows that costs of Parkinson's to our nation are nearly double previous estimates and includes medical costs like hospitalizations and other ways the disease affects finances, such as missed work days and unpaid care.
The burden of Parkinson's affects patients, their families and their friends. This is why our mission to cure Parkinson's is so critical. For a patient, "cure" can mean a lot of things. A drug to stop Parkinson's from progressing may be a cure. But many patients, including Michael J. Fox, assert that a therapy to effectively treat symptoms over the long term without disabling side effects would be tantamount to a cure in their view.
Since 2014, the U.S. Food and Drug Administration has approved nine new drugs and three devices for Parkinson's to address serious symptoms of Parkinson's. Now, with momentum and a growing community of researchers on our side, we have to keep pushing forward.
The Michael J. Fox Foundation's (MJFF) research strategy is focused on accelerating the most innovative ideas to cure Parkinson's. To do this, we fund research to define the causes of disease and identify new drug targets. And at the same time, we support research to measure and treat the causes and symptoms of the disease."
MJFF approaches Parkinson's research from the most important perspective, that of patients. Our Fox Insight study was created to hear directly from people with Parkinson's and act on what we discover. In addition, patients told us they needed more and better ways to deal with gait and balance problems. We issued a call for projects and asked patients to review them to make sure they would meet their needs.
We thank all of you who provide your valuable experiences through Fox Insight and help us in so many other ways. Your generosity is inspiring -- from donating to supporting research to volunteering for clinical trials and joining Team Fox -- you make success possible.

Read more articles on the Michael J. Fox Foundation web site at https://www.michaeljfox.org/ or at the FB page at https://www.facebook.com/michaeljfoxfoundation